I got a LOT of feedback about my last post. I got e-mails, FaceBook messages, calls all of love, prayers and encouragement. I want to thank everyone who just re-doubled their prayers.
I'm much better now. Saturday was the worst of it. I've slowly improved since then. (Big shoutout to my MOM!!!) I just wanted to share with everyone what was going on in my head at the darkest of times. Please be assured that in as much as I sometimes go there, I don't live there. I'm just telling you that there are times of weakness but even at the bleakest of times, I have never given up on my life or on my faith.
UPDATE: I've told my doctor about my neuropathy (pins and needles on my hands and feet). We're scheduling another PET scan in the next couple of weeks. She says it's to check if we can scale back the treatments. I'm just visualizing a clear PET scan. I'm opening myself to the possibility of this miracle. (Dean, you're comment just encouraged me!!!)
Again, Thank you, all!!! Please don't stop believing. I believe I will have my miracle soon.
Friday, August 21, 2009
Sunday, August 16, 2009
Tired in body and spirit
That is what I posted in Facebook yesterday. I knew I'd get a lot of prayers and love my way (and I did).
Yes, I had another treatment. Was it difficult? Yes. Not more difficult than others. I had nausea. Not much actual vomiting. Major fatigue. The new thing is this neurotoxicity. I feel pins and needles in the ends of my fingers and the bottoms of my feet. I've never felt that before. The doctor has told me about it. In almost four years, and this is the first time I'm feeling it.
It does scare me. I'm just scared that my body cannot recover as it used to. It seems there is so much toxins in my body that I'm having trouble clearing. I'm going to try an epsom salt bath. Although I was warned that since I'm so depleted, I shouldn't stay too long.
My accupuncturist was a great help yesterday. He listened as I told him how tired I was. I did not know he was also a homeopath. He gave me some good stuff that uplifted the spirit.
-----------------------------
Let me share how bad it got yesterday for me to type my Facebook plea. I don't like feeling this way... down and depleted. I fight with prayers and positivity and I reach out to friends and family who lift me up. (Cowsin!!!)
I've learned that even if I don't like that I feel negative, I need to express it and acknowledge it then let it go.
-------------------------
I'm tired of chemo. I don't want to do it anymore. It would be a little easier if there was an end in sight, but I'm on an indefinite treatment. And now this neurotoxicity...
It feels like there is a heavy load on my body that keeps getting heavier every treatment. It squashes my spirit. It's easy to be positive when you are feeling good. But I'm tired... very tired...
You know that I cannot stand to be in my doctor's office? That space is so offensive to me, the thought of me having to be there just makes my stomach heave. Even now that I'm writing about it, I can smell the fumes. But I'll have to talk to her soon. I'll probably invite her outside.
I'm tired of having to be strong. I don't have anything left. All I can do is offer it up since I have nothing left.
Yes, I had another treatment. Was it difficult? Yes. Not more difficult than others. I had nausea. Not much actual vomiting. Major fatigue. The new thing is this neurotoxicity. I feel pins and needles in the ends of my fingers and the bottoms of my feet. I've never felt that before. The doctor has told me about it. In almost four years, and this is the first time I'm feeling it.
It does scare me. I'm just scared that my body cannot recover as it used to. It seems there is so much toxins in my body that I'm having trouble clearing. I'm going to try an epsom salt bath. Although I was warned that since I'm so depleted, I shouldn't stay too long.
My accupuncturist was a great help yesterday. He listened as I told him how tired I was. I did not know he was also a homeopath. He gave me some good stuff that uplifted the spirit.
-----------------------------
Let me share how bad it got yesterday for me to type my Facebook plea. I don't like feeling this way... down and depleted. I fight with prayers and positivity and I reach out to friends and family who lift me up. (Cowsin!!!)
I've learned that even if I don't like that I feel negative, I need to express it and acknowledge it then let it go.
-------------------------
I'm tired of chemo. I don't want to do it anymore. It would be a little easier if there was an end in sight, but I'm on an indefinite treatment. And now this neurotoxicity...
It feels like there is a heavy load on my body that keeps getting heavier every treatment. It squashes my spirit. It's easy to be positive when you are feeling good. But I'm tired... very tired...
You know that I cannot stand to be in my doctor's office? That space is so offensive to me, the thought of me having to be there just makes my stomach heave. Even now that I'm writing about it, I can smell the fumes. But I'll have to talk to her soon. I'll probably invite her outside.
I'm tired of having to be strong. I don't have anything left. All I can do is offer it up since I have nothing left.
Saturday, July 11, 2009
Big splash
Today is Burke's 7th birthday and we had a pool party. We all had lots of fun. We had the whole place to ourselves. There was a big slide, a small wading pool, a big pool and a hot tub. We had a lot of friends help make it a great party.
Yes, I was able to swim. My wound had dried up enough for me to get in the water. I wasn't in the water long. Really, it was just to catch Burke as she came down the slide. But I loved it. I've missed the water. I used to swim competitively when I was young. It was really killing me that I could not get in the water to teach Burke. Now I can.
Yes, I was able to swim. My wound had dried up enough for me to get in the water. I wasn't in the water long. Really, it was just to catch Burke as she came down the slide. But I loved it. I've missed the water. I used to swim competitively when I was young. It was really killing me that I could not get in the water to teach Burke. Now I can.
Friday, July 03, 2009
Less of a cyborg
In November, they put in a PleurX catheter in my lung to help with the gathering liquid. Since then, I have not been able to draw much liquid at all. Since my PET scan showed vast improvement last April, it was decided that the catheter can be removed.
Yesterday, it was taken out. It was just an outpatient procedure.
I remember last November, when they had just put it in, I told myself, this will not stay long. I want to swim in the summer. Guess what, folks... I'll be in a bathing suit before long.
Yesterday, it was taken out. It was just an outpatient procedure.
I remember last November, when they had just put it in, I told myself, this will not stay long. I want to swim in the summer. Guess what, folks... I'll be in a bathing suit before long.
Friday, May 01, 2009
Brief History 2009
I've updated my Brief History with the latest stuff...
In Dec 2005, I had a routine physical just coz I turned 30 that year. I was expecting a clean bill of health. But I did mention to the doctor that my father had a heart attack in his late 30's so they did an EKG.
Everything was fine except for the EKG. There were some abnormalities that they could not even determine with a sonogram of the heart.
Jan 2006 - So I saw a cardiologist. She did a CT scan of the heart. Turns out my heart was great. Although my lungs had cancer. So a pulmonologist verified it to be Stage 3B Non Small Cell Lung Cancer (Bronchio Alveolar Adenocarcinoma). It was inoperable since I had it in both lungs and it had spread thru the lymphatic system. (Usually a cancer grows in tumors. Mine had spread into thousands of tiny little tumors all over the lungs.) I started to see my oncologist.
I started treatment Feb 28, 2006. My first regimen consisted of Cisplatin and Taxotere on a 21 day cycle. I receive treatment at my doctor's office - Virginia Cancer Care in Loudoun county.
May 2006 - I had a CT scan that showed no change. My doctor and I decided to move to a gentler regimen so that I can work. My new regimen consisted of Carboplatin and Gemzar. Since the side effects were not too bad, I started to go back to work full time.
Aug 2006 - My doctor got insurance authorization to start me on Avastin.
Jan 2007 - PET scan showed no significant change. Again, we changed my regimen - Tarceva (since it has shown promising results on young, non-smoking Asian females) and Avastin. I'm not on chemo anymore. I'm on targeted therapy.
May 2007 - PET scan showed that the primary tumor has doubled in size. And that the spread of the cancer is now more dense in the right lung than before. We're changing the regimen again. Avastin and Alimta (chemo) every 21 days.
Jun 2008 - PET scan showed that the disease was stable.
Aug 2008 - Problem: Liquid in my lungs. Doctor extracted with big bad needle. (Thoracentesis)
Sep 2008 - Liquid in my lungs return with a vengance. Another visit to the doctor with the big needle. (Thoracentesis)
Oct 2008 - PET scan showed disease was growing fast. There are 2 things I needed to do. 1) Take care of the liquid in my lungs with a pleurodesis. 2) Change medication. After a year and a half, Avastin and Alimta had run it's course.
Nov 2008 - Instead of getting the pleurodesis, the doctor put in a PleurX Cathether.
Dec 2008 - New chemotherapy: Cisplatin and Navalbene on a 28 day cycle. Very difficult.
April 2009 - PET scan shows vast improvement in size and activity. Slight change in dosing: Instead of getting Cisplatin all in Day 1, it is split to 3 days so that I can be given more fluids to help with the side effects.
In Dec 2005, I had a routine physical just coz I turned 30 that year. I was expecting a clean bill of health. But I did mention to the doctor that my father had a heart attack in his late 30's so they did an EKG.
Everything was fine except for the EKG. There were some abnormalities that they could not even determine with a sonogram of the heart.
Jan 2006 - So I saw a cardiologist. She did a CT scan of the heart. Turns out my heart was great. Although my lungs had cancer. So a pulmonologist verified it to be Stage 3B Non Small Cell Lung Cancer (Bronchio Alveolar Adenocarcinoma). It was inoperable since I had it in both lungs and it had spread thru the lymphatic system. (Usually a cancer grows in tumors. Mine had spread into thousands of tiny little tumors all over the lungs.) I started to see my oncologist.
I started treatment Feb 28, 2006. My first regimen consisted of Cisplatin and Taxotere on a 21 day cycle. I receive treatment at my doctor's office - Virginia Cancer Care in Loudoun county.
May 2006 - I had a CT scan that showed no change. My doctor and I decided to move to a gentler regimen so that I can work. My new regimen consisted of Carboplatin and Gemzar. Since the side effects were not too bad, I started to go back to work full time.
Aug 2006 - My doctor got insurance authorization to start me on Avastin.
Jan 2007 - PET scan showed no significant change. Again, we changed my regimen - Tarceva (since it has shown promising results on young, non-smoking Asian females) and Avastin. I'm not on chemo anymore. I'm on targeted therapy.
May 2007 - PET scan showed that the primary tumor has doubled in size. And that the spread of the cancer is now more dense in the right lung than before. We're changing the regimen again. Avastin and Alimta (chemo) every 21 days.
Jun 2008 - PET scan showed that the disease was stable.
Aug 2008 - Problem: Liquid in my lungs. Doctor extracted with big bad needle. (Thoracentesis)
Sep 2008 - Liquid in my lungs return with a vengance. Another visit to the doctor with the big needle. (Thoracentesis)
Oct 2008 - PET scan showed disease was growing fast. There are 2 things I needed to do. 1) Take care of the liquid in my lungs with a pleurodesis. 2) Change medication. After a year and a half, Avastin and Alimta had run it's course.
Nov 2008 - Instead of getting the pleurodesis, the doctor put in a PleurX Cathether.
Dec 2008 - New chemotherapy: Cisplatin and Navalbene on a 28 day cycle. Very difficult.
April 2009 - PET scan shows vast improvement in size and activity. Slight change in dosing: Instead of getting Cisplatin all in Day 1, it is split to 3 days so that I can be given more fluids to help with the side effects.
Thursday, April 30, 2009
April 23 PET Scan
I apologize for disappearing for a while. We just went through a financial crisis that thankfully has resolved itself. (Whew!) I'm now going back and filling in all the details. - xyz (6/10/09)
April 23 - PET Scan
When my doctor noticed that I was really having difficulty dealing with the latest treatments (real bad nausea, fatigue, etc... due to Cisplatin/Navalbene combo), she decided to order a scan to see how I was really doing. My disease has no other markers that can be tracked outside the scan so I have to wait months to see how the treatments are affecting me.
GOOD NEWS!!! There was significant shrinking and activity all around. Compared to last October's scan, there was vast improvement. Last October, they noticed lots of activity in the lymph nodes around the right armpit area. They had said that the disease may have spread there. This time, that seemed to have cleared. I may have been fightling off an infection at the time.
So, I'm still on the same medication. My doctor did adjust how the dosage was given. I used to get Cisplatin all of day 1 which made me sick for about 10 days or so. She split it into 3 days. That way, she can give me more fluids to help with the nausea. This really helped me. Nausea isn't as bad.
I'm continuing to see my accupuncturist (thanks to my friends!!!), chiropractor and my Reiki master. All of whom help me in ways I can't express...
-----
I was really happy to hear the great improvement to my health. But it really bothered me that I had to continue with the same medication because of how difficult it is. It really wipes me out. Some nights, I find myslef whimpering in my mother's arms. I was hoping that I would somehow move on to another gentler medication. Everytime I had to go to treatment, I felt like I was putting my hand on the stove. I knew it was going to be painful but I still put my hand on it. I have to. So I gather my strength, faith, and all I've got and keep going. The outpouring of love and support always helps. I know there are many people out there praying for me. I draw from your faith as well. Please keep believing.
April 23 - PET Scan
When my doctor noticed that I was really having difficulty dealing with the latest treatments (real bad nausea, fatigue, etc... due to Cisplatin/Navalbene combo), she decided to order a scan to see how I was really doing. My disease has no other markers that can be tracked outside the scan so I have to wait months to see how the treatments are affecting me.
GOOD NEWS!!! There was significant shrinking and activity all around. Compared to last October's scan, there was vast improvement. Last October, they noticed lots of activity in the lymph nodes around the right armpit area. They had said that the disease may have spread there. This time, that seemed to have cleared. I may have been fightling off an infection at the time.
So, I'm still on the same medication. My doctor did adjust how the dosage was given. I used to get Cisplatin all of day 1 which made me sick for about 10 days or so. She split it into 3 days. That way, she can give me more fluids to help with the nausea. This really helped me. Nausea isn't as bad.
I'm continuing to see my accupuncturist (thanks to my friends!!!), chiropractor and my Reiki master. All of whom help me in ways I can't express...
-----
I was really happy to hear the great improvement to my health. But it really bothered me that I had to continue with the same medication because of how difficult it is. It really wipes me out. Some nights, I find myslef whimpering in my mother's arms. I was hoping that I would somehow move on to another gentler medication. Everytime I had to go to treatment, I felt like I was putting my hand on the stove. I knew it was going to be painful but I still put my hand on it. I have to. So I gather my strength, faith, and all I've got and keep going. The outpouring of love and support always helps. I know there are many people out there praying for me. I draw from your faith as well. Please keep believing.
Monday, March 16, 2009
Building a heightened reality
My latest addiction is Hairspray, the movie musical that came out last year. I love it. A lot. I got the special double disc edition where they had all these DVD extras.
When they were explaining how they did the production design. They explained how they had to create a "heightened reality". It wasn't just 60's. It was extremely 60's. This was the world in Tracy Turnblad's mind. In her head, there is singing and dancing all the time. The sets had to reflect that so it would not be a stretch to see the characters just burst out into song.
I really took this to heart. I'm building my heightened reality wherein people fight and WIN against cancer everyday. This is how it should be. For me, this is how it is.
I'm adopting Hairspray as my reality. The fat girl gets the guy (check!). She fights and wins for something she truly believes in (working on this one). I'm working on a soundtrack...
When they were explaining how they did the production design. They explained how they had to create a "heightened reality". It wasn't just 60's. It was extremely 60's. This was the world in Tracy Turnblad's mind. In her head, there is singing and dancing all the time. The sets had to reflect that so it would not be a stretch to see the characters just burst out into song.
I really took this to heart. I'm building my heightened reality wherein people fight and WIN against cancer everyday. This is how it should be. For me, this is how it is.
I'm adopting Hairspray as my reality. The fat girl gets the guy (check!). She fights and wins for something she truly believes in (working on this one). I'm working on a soundtrack...
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